Supporting Family Health Care Decisions

MEMORANDUM

To: Family Decisions Coalition Members
Re: Report on March 27th Press Conference and Lobbying
From: Lois Steinberg
Date: April 3, 2000

Press Conference

The Press Conference was held in the Legislative Office Building in Albany. Approximately 15 press and TV reporters turned out. Albany Channels 6 and 10 included the conference on their 6:00 p.m. newscasts. So far, articles have appeared in The NY Law Journal on March 30th and The Syracuse Herald American on April 2nd. If anyone has seen others, please let us know.

Speakers included Jean Murphy, executive director of FRIA, Rev. Frank Geer, director of Religious Services at St. Luke's-Roosevelt Hospital and two doctors who were involved in the Pouliot case in Syracuse, Dr. Kathy Faber-Langendoen [text of comments here] and Dr. Catherine Caldicott. Everyone who has commented, thought the speakers were very effective.

Lobbying

We had 11 meetings covered by 14 people in two teams, each with physician, nursing, institutional, clergy and patient advocate representation.
Who we met:
Legislative staff for Senators Bruno, Hannon, Hoffman, DeFrancisco, Farley, Dollinger, and Assemblymen Silver and Gottfried. Also, Jim Clyne, Assembly staff person on health.
What they told us:
Nothing will go through the Senate without Hannon's OK and Hannon will not OK if the Catholic Conference opposes it. Members would find it hard to support because they fear religious opposition. Silver's aide said it's hard to make members vote in ways that will make people mad when they know the Senate will never approve. Nitido, of Gottfried's office said the same thing. However, he noted that no one has discussed the bill with Silver recently.

Legislators' reactions to the bill are "emotionally charged." Senator Farley, is an example. His mother was in a terrible auto accident - all her bones were broken, she was taken to the hospital and heard the nurse say: "We shouldn't bother with a stimulant for this one, right?" The doctor said "try it anyway." It took her three years to recover, but she persevered, was always crippled but went on to raise 6 sons and lived into her 90s.

All Senators appear to defer to Hannon on health issues, or as one of our participants put it: "pass the buck." We went there to ask them to put pressure on Hannon, but they told us that we should be doing that! According to Bruno's aide, his tendency is to let the Senator in charge of an issue deal with it.

What might help:
Al Cardillo (for Bruno), who said he was very familiar with the FHCDA, thinks a good strategy would be to make clear the deficiency of New York law. He thinks legislators do not understand the need for this bill. We need to educate all members of the legislature, both Senate and Assembly.

Jane Preston (for Hannon) thinks we need to educate the public to "create an environment that will make people more receptive to the issue. According to her, we need a "massive public opinion campaign to get people to put more pressure" on legislators. We should also get support of the Governor and the Public Health Council.

A couple of people thought more negotiation might help.

Next Steps:

  1. A follow up letter to the people we met with.
  2. A letter to all legislators attached to press clippings about the press conference.
  3. Organize Albany based team to handle on-going lobbying.
  4. Get costs for a postcard campaign.
  5. Set up e-mail chain letter.

For more Information, E-mail Family Decision Coalition
For questions about website, E-mail Jack Freer